Relevant Links


Patient Organizations & Information


General Information for Patients, their Families and Caregivers

  • Notre Recherche Clinique
    Le portail des essais cliniques et de la recherche clinique / Clinical trials and clinical research portal, in French


Alzheimer’s Disease

Alzheimer’s Society (UK) | Alzheimer Scotland | Alzheimer Europe | Alzheimer’s Research Forum
This research-oriented website reports on the latest scientific findings, from basic research to clinical trials; creates and maintains public databases of research data and reagents, and hosts discussion forums to promote debate, speed the dissemination of new ideas, and break down barriers across the numerous disciplines that can contribute to the global effort to cure Alzheimer’s disease.


Motor Neuron Disease

Also known as ALS or Lou Gehrig’s disease. See our fact sheet on motor neurone disease and stem cells.
The National Institute of Neurological Disorders and Stroke | Motor Neuron Disease (MND) Association | MND Scotland


Multiple Sclerosis

Multiple Sclerosis Information Pages
The European Multiple Sclerosis Platform | The Multiple Sclerosis Society
Multiple Sclerosis Trust | The National Insitute of Neurological Disorders and Stroke


Muscular Dystrophies

See our fact sheet on muscular dystrophy and stem cells.
Muscular Dystrophy Campaign (UK) | Association Français contre les Myopathies
Action Duchenne – aims to offer a unique forum for sharing information and ideas in the search for a cure and better medical care for Duchenne and Becker. This link takes you directly to a blog post by Professor Terry Partridge about stem cells and muscular dystrophy.


Parkinson’s Disease

See our fact sheet on Parkinson’s disease and stem cells.
European Parkinson’s Disease Association | Parkinson’s Disease Society (UK)
The National Institute for Neurological Disorders and Stroke – Parkinson’s disease information page.
PDTrials – a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research.  Trials listed are in North America, but lots of useful information for anyone with Parkinson’s.


Spinal Cord Injuries

See our fact sheet on stem cells and spinal cord injuries


ICCP – International Campaign for Cures of Spinal Cord Injury Paralysis
European Spinal Cord Injury Federation – Pan-European federation of organisations representing people with spinal cord injuries



The Stroke Association | The Stroke Trials Directory of the Internet Stroke Center
The National Institute of Neurological Disorders and Stroke – Stroke Information Page
Stroke Alliance for Europe – Listing of European Patient Organizations


Type 1 Diabetes

See our fact sheet on type 1 diabetes and stem cells.
Juvenile Diabetes Research Foundation International


Other Information for Patients

Progress Association – Infertility and Genetic Disease
European Society of Human Genetics – Genetic Diseases and Genetic Testing


Leiomyosarcoma Disease

Follow current and accurate information about causes and preventive treatments.


Stem Cell Organizations, Networks and Consortia


International Stem Cell Organizations

ISSCR – International Society for Stem Cell
ICSCN – International Consortium of Stem Cell Networks
SSSCR – Student Society for Stem Cell Research
Genetics Policy Institute – Nonprofit Organization Dedicated to Establishing a Positive Legal Framework to Advance Stem Cell Research


European Stem Cell Organizations, Networks and Consortia


Research consortia (FP6/FP7)

Beta Cell Therapy | BEST Stem Cells | EndoStem
ESTOOLS | EU Human Embryonic Stem Cell Registry | EuroStemCell
EuroSyStem | NeuroStemCell | OptiStem
Purstem | REMEDiE | Stem-HD


National and Regional Stem Cell Networks



STEM-Pole (Paris Regional Stem Cell Network, France)



German Stem Cell Network
German Society of Stem Cell Research
Stem Cell Network North Rhine Westphalia



Norwegian Stem Cell Center



Swiss Stem Cell Network
Stem Cells and Regenerative Medicine National Research Programme (NRP63)


United Kingdom

Scottish Stem Cell Network
East of England Stem Cell Network (EESCN)
North East England Stem Cell Institute
London Regenerative Medicine Network
UK National Stem Cell Network  – Archive Website, as the UKSCN ceased operation in 2011


North American Stem Cell Networks

Stem Cell Network Canada
Canadian Stem Cell Foundation


Asia Pacific, Africa and Middle East Stem Cell Networks

Australasian Society for Stem Cell Research (ASSCR)
Australian Stem Cell Centre
Regenerative and Bionic Medicine Network (RBMN) of Egypt
Singapore Stem Cell Consortium
SNAP  – Stem Cell Network Asia Pacific
Stem Cell Society Singapore