Relevant Links

 

Patient Organizations & Information

 

General Information for Patients, their Families and Caregivers

• A closer look at stem cell treatments – ISSCR
  Website designed to equip patients, their families and doctors with tools and information to help make decisions about stem cell treatments.

• ISSCR Patient Handbook on Stem Cell Therapies
  Available in English, French, German, Italian, Spanish, Portuguese, Dutch, Japanese, Persian, Turkish

• Notre Recherche Clinique
  Le portail des essais cliniques et de la recherche clinique / Clinical trials and clinical research portal, in French

 

Alzheimer’s Disease

Alzheimer’s Society (UK) | Alzheimer Scotland | Alzheimer Europe | Alzheimer’s Research Forum
This research-oriented website reports on the latest scientific findings, from basic research to clinical trials; creates and maintains public databases of research data and reagents, and hosts discussion forums to promote debate, speed the dissemination of new ideas, and break down barriers across the numerous disciplines that can contribute to the global effort to cure Alzheimer’s disease.

 

Motor Neuron Disease

Also known as ALS or Lou Gehrig’s disease. See our fact sheet on motor neurone disease and stem cells.

The National Institute of Neurological Disorders and Stroke | Motor Neuron Disease (MND) Association | MND Scotland

 

Multiple Sclerosis

Multiple Sclerosis Information Pages

The European Multiple Sclerosis Platform | The Multiple Sclerosis Society

Multiple Sclerosis Trust | The National Insitute of Neurological Disorders and Stroke

 

Muscular Dystrophies

See our fact sheet on muscular dystrophy and stem cells.

Muscular Dystrophy Campaign (UK) | Association Français contre les Myopathies

Action Duchenne – aims to offer a unique forum for sharing information and ideas in the search for a cure and better medical care for Duchenne and Becker. This link takes you directly to a blog post by Professor Terry Partridge about stem cells and muscular dystrophy.

 

Parkinson’s Disease

See our fact sheet on Parkinson’s disease and stem cells.

European Parkinson’s Disease Association | Parkinson’s Disease Society (UK)

The National Institute for Neurological Disorders and Stroke – Parkinson’s disease information page.

PDTrials – a collaborative initiative of Parkinson’s organizations dedicated to increasing education and awareness about clinical research.  Trials listed are in North America, but lots of useful information for anyone with Parkinson’s.

 

Spinal Cord Injuries

See our fact sheet on stem cells and spinal cord injuries

 

ICCP – International Campaign for Cures of Spinal Cord Injury Paralysis

European Spinal Cord Injury Federation – Pan-European federation of organisations representing people with spinal cord injuries

 

Stroke

The Stroke Association | The Stroke Trials Directory of the Internet Stroke Center

The National Institute of Neurological Disorders and Stroke – Stroke Information Page

Stroke Alliance for Europe – Listing of European Patient Organizations

 

Type 1 Diabetes

See our fact sheet on type 1 diabetes and stem cells.

Juvenile Diabetes Research Foundation International

 

Other Information for Patients

Progress Association – Infertility and Genetic Disease

European Society of Human Genetics – Genetic Diseases and Genetic Testing

 

Leiomyosarcoma Disease

Follow current and accurate information about causes and preventive treatments.